Today Greyson and I tried out our new hats that Stacy made for us. Greyson thought it was pretty cool having a matching hat with his dad. Don’t get to excited by not seeing anything on Greyson’s nose, this was a special picture so we had him on blow by for the photo shoot. Then he went on the Nasal canula for about three hours while Stacy and I held him. We are praying for his lungs as his c02 was up again last night, not up too high but it needs to stay where it is or go lower as it came back at 68, too close to the 70’s for his dad to feel good about!
While we didn’t get to see it, Greyson tried out a swing today. Apparently he was quite upset this morning so after they changed him and made sure his food was going they put him in a swing. From what we hear he really liked it. He was pretty labile today, much more than he has been for awhile. We are not really sure what is up with that but hope that tomorrow being a new year he will start it off right by having a great day.
Happy new year everyone!