Let’s just pack this up k?


Tonight Greyson told us to pack up his ventilator and get rid of it.  Funny request unless you are aware of the fact that although we didn’t know it, last night was Greyson’s last night on the ventilator!!  Yes that’s right, Greyson’s pulmonologist called and told us that he no longer had to be on the ventilator!  Praise the Lord!!!   We scheduled his bronchoscopy (where they will look down his throat and make sure the trach has not done any damage to his airway) for May 3 (two weeks from today!).  It is quite possible that on that day, in just two weeks, we will know when Greyson’s trach will be coming out!  Even if that takes a bit, this is a HUGE step forward and we are so excited to be done with the ventilator.  It served us well but we are not at all sad to see it go (well go into the family room, we will keep it around for a little while just to be sure there are no issues that come up). 

We also saw the cardiologist today and he said Greyson is doing great off the medicine we quit on Valentines day.   Anyway this is the last medicine that we had to get from Tacoma, so now we can get all his meds from our local pharmacy.  This is another HUGE step in our lives becoming more convenient.   We don’t have to see the cardiologist again for a whole year!

Now you can pray for us that we will be able to find child care for Greyson so he won’t have to go to day care.  This would not be good for him since he still has a weakened immune system.  We have a little bit of time, but once the trach comes out we will no longer get nursing (why would we?) and will need to find someone to watch him while we are at work.  We know that God will supply this need just as He has provided  for all of our needs throughout this whole experience. 

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10 thoughts on “Let’s just pack this up k?

  1. Greyson we are so excited that you get to send that ventilator into the family room!!!! God is so good. I want to babysit you while your parents are at work so you need to have them move to Nampa. Wouldnt that be fun? Then you could play with your cousins all the time! No seriously all kidding aside I know God has someone all lined out to take over when you are ready. We will continue to pray for you as your dad asked too. Praying is always good. Keep up the great work!

    Love you,
    Aunt Tam

  2. How exciting to see that noisy, big machine go to the family room. Good thing we made room for it! Your twin stroller is all tucked away at Grammie and Papa’s. What an exciting day yesterday was. All such good news. We sure had fun playing with you Greyson. Maybe soon you will be able to come play at our house. We would love that! Have a happy fun day. Hugs to you three!

  3. Wow it is so exciting to know that the big old ventilator is not in the picture anymore. Things are looking great for you and your mom and dad. I would love to babysit for you if you just didn’t live so far away. The good thing is that you only have to worry about it for 3 months and then mom will be home for the summer. Can’t wait to hear what they say in 2 weeks about the trach.

    Love you bunches
    Grandma Terry

  4. YAY for Greyson!!! WOOO-HOOOO!!! So you said his Bronch is May 3- 2 weeks from today– I am assuming that you meant March 3 🙂 I am so happy for you all, and give the G-Man a high five from me!

  5. Just so that you are aware of all of your options, we too would love to babysit Greyson–if you would just move to Oregon 🙂 We are so excited to hear all of this good, good news. Amazing! Greyson, we can’t wait to see you again. You have three cousins that are really looking forward to playing with you.We love you all!!

  6. WOW, what wonderful news!!! i still love continuing to follow greyson’s story as i will always remember him as my first little patient!! CONGRATS to all of you!!

  7. Hallelujah! What an exciting day. Let’s do the Happy Dance Greyson! I love you. I will be praying for someone fun and with much wisdom to come into your life to take care of all your needs. I know what it means to have someone take care of you while Mom and Dad are working hard.

    There is someone we just haven’t needed to know until know.
    We love you!!

    Great Aunt Nana

  8. Yeah! Congratulations! That is so very exciting. We will be thinking of you, especially on March 3. What wonderful news. Hugs all around.

  9. What absolutely stupendous news. Thank you God.

    Just think, no ventilator and no “long distance” medications. And we will be praying for someone very special to take care of you while mom and dad are at work.

    Good job Greyson, Mom and Dad.

    With love,

    KJ & family

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