It’s not the hilton, but they do try to keep me comfy.

Today we talked to the primary Dr. for the week.  In the PICU there is one Dr. who “drives the boat” and works every day for a week.  Then the other Dr’s take turns working nights for that week and “keeps the boat afloat”.  It was nice to talk to her and hear her perspective on what is going on and where we are headed now.

From her perspective today is the first day Greyson has shown real improvement.  She seemed positive but said even if everything went perfectly from here on out we are probably looking at having at least another month before we could possibly bring Greyson home.  Anything less than perfect means it is going to take longer.  We are OK with that and will try to gear up to keep going.  Greyson continues to look better and open his eyes and look around.  He doesn’t move to much and we are unsure whether that is because of the drugs, how he feels (sick), or due to the fact that he has tubes coming from all over.  It is good to see him looking better though.  His blood gasses continue to be high, well at least the c02.  His ph has been pretty stable where we want it to be.  Hopefully as he continues to improve the c02’s will come down to a normal range and stabilize.  Right now they are saying towards the end of next week they will put Greyson on the surgery schedule.  This of course is provided he continues to improve.  He’s in God’s hands and we know that with God all things are possible.  We have to admit though that it is harder to leave him in the PICU than it was in the NICU for a variety of reasons.