So what has been our modo through this whole experience? God will give us enough grace for each day. If one day is bad, remember that tomorrow is a new day. Well I certainly feel that way today. Greyson’s heart rate is back to normal and his blood gas is much better. While today feels better it is not without its challenges. Greyson has develped an infection which is never a good thing but they have him on antiobiotics now. The sad part to us is really the looks of the situation. Not the “perspective” of the situation, but literally the looks of it. It is hard to see him once again with many tubes coming out of him and hooked up to so many IV machines. While this looks bad it is not as bad as it seems. Aside from the risk of infection that comes from any IV, he is receiving only a few more medicines right now. It is just a change in delivery method. Greyson is very sedated right now and will be sleeping peacefully probably for a day or two. As they work to get him past this acute crisis moment they want him to stay calm and pain free, as do we! Another positive aspect is they are probably going to try to begin feeding him again (they stopped the feeds because of all that was happening leaving the possibility that he would have to go back to IV nutrition for awhile, we are very happy it doesn’t look like that is going to be necessary).
They intubated him through his nose this time, so hopefully when he does wake up it will be a little more pleasant not having a tube in his mouth, but we’ll see how that goes when he becomes more alert. Another change is that he is receiving nitric oxide gas as well as oxygen to help with the hypertension.
So praise the Lord things are a bit better. We still have a way to go but feel he is again in the right place at the right time to receive the best treatment. As you can see he is now in a big big big boy crib and has his own room. We are excited that he has a window and will receive a little sunlight, something he has never known so far (well in room B he was across the room from windows, but he’ll get much more light now. We are grateful for this as well because it was not good for the mood in room E to always be so dark and without any natural light (room E had no windows to outside, kinda like my office but that’s another story….).
Bob & Stacy–we’re so sorry Greyson has taken a turn for the worse. You all are in our thoughts and prayers everyday. I so appreciate you taking the time to write every night and keep us updated, and your upbeat attitude and sense of humor is a blessing and an inspiration to us all. We’ll be praying specifically for Greyson, but also for the two of you.
Love, Rod & Linda
Jon said looking at this picture that he is going to really be into computers. Think of all the fun he can have with video games in this room. Jon and Lizzy are spending the night while their mom and aunt get to go see you and young little Greyson. They said they will pray for you Greyson!
Love Jon Lizzy and Grandma Terry and Grandma Great
Although I am very sad that I won’t get to see you guys in the NICU, I am happy that the doctors are taking steps to get Greyson well enough to go home. I just wanted to let you know that I will continue praying for Greyson to make it over this hurdle, so that he can work on going home. Your family is truly special to me, and you guys have taught me a lot of lessons about love, faith and family, that I will use to become a more well rounded nurse. Thank you so much for being great parents, and great people. I hope to see you soon.
It sounds like things are going a little better today. We are praying for each day to be better and better. Hope Greyson gets to eat soon as we sure don’t want him to loose any of that precious weight. I am so thankful that he is resting well. I know this helps you two also, knowing he isn’t hurting. There will be plenty of time for him to be wake. Aunt Tammy and Aunt Debbie will bring sunshine into your life tonight and tomorrow. Prayers to you and blessing to all of you. Mom and Dad.
Hi Bob and Stacy,
Just wanted to let you know the whole church at Kalama was praying for Greyson this morning. Everyone sends their love and prayers.
Love, Margaret
Hi Bob and Stacy and baby Greyson, we clicked on the picture to make it big. Boy your little guy has really grown and what a big room. Today is the 27th so we’re hoping today is a really good day for that little guy. We pray for healing for him and that you will be taking him home soon. We love you all and pray for you continually. Bob and Stacy take care of each other, hope you are both over you colds.
Love Aunt Fran