Well the day has not been a very good one as you have/can read by my last post. Unfortunately it is still a very difficult day as we approach the end of it. Something happened while Greyson was ventilated (probably he worked himself into a frenzy) and at one point he managed to unlock the lock that keeps his breathing tube in place. About that time he got so worked up that his heart rate was soaring. He spent most of the day with his poor heart beating at about 220 beats per minute. This and everything else that was going on also lead to very bad blood gasses. After working with him all day the Dr. talked to us about moving Greyson to Marie Bridge Hospital (this hospital is connected to the one Greyson was in, but has a PICU or pediatric intensive care unit) They work with older kids and the types of breathing issues Greyson is now struggling with. So we have just made it to the new hospital and they are working on Greyson right now. They need to put a different type of tube down his throat to ventilate him better. We believe we are in the right place but were unaware of how hard it would be to leave those who we have grown to love and come to a new place with a new staff. We are praying they will be able to help Greyson and he will be able to begin recovering again. It was hard to watch Greyson go from nothing but a cpap on him, back to IV’s, ventilator tubes, etc. While it feels like a giant step back to three months ago, it is where we are. Now we must learn to fit in to this new system.
Stacy and I are exhausted as we arrived at the hospital at 6am this morning. They have arranged for us to stay overnight in an apartment here so we are grateful that we will not have to go very far as we attempt to make this stressful adjustment. We want to thank everyone for your prayers and words of support, they are an incredible source of encouragement to us right now.
We are with you in our hearts and are praying every step of the way. What a traumatic day for all of you, only God can give strength to get through a day like this one. We love you, Grandma Great and I are praying. I certainly wouldn’t have dreamed you would be in another hospital tonight but again it is in Gods’ hands.l
Bob, Stacy and Greyson,
I was saddened to hear about the past few difficult days you have had. I will continue to pray for all of you. God has already done many amazing things through you. Continue to live each day knowing God is with you and nothing is impossible for Him. Everything happens for a reason. May God continue to give you peace and strength each day. Love in Christ, Dawn
Just wanted to let all three of you know that I am praying for you all. That God touches you each at this time. Love you all!
-Sarah
Greyson,
I will miss you but I know that everyone at the PICU will love you as much as we did in the NICU. Although I was sad to see you go, I know they will take great care of you. I look forward to the updates (praying for positive one) and wish you and your mom and dad the best.
Kristi RN, NICU
Love and prayers are coming your way! Mom and Dad
I am very sorry to hear that Greyson is having a difficult time. I jope and pray that everything gets better for him now. I am also saddened that you both are having to go through more tough times. You are all in my prayers and thoughts daily. I am praying for you to have strength during this difficult time. God Bless you three!
God is still working – keep leaning on Him for strength – support each other & try to get the rest you so desperately need. We love you!
The whole family prayed for you at church this morning, kids and all! Even though we aren’t there, please feel our support!, prayers and love!
It is hard to imagine all that you guys are facing. We pray confidently only because we know that God knows what it is like for you and loves you even more than we do. But if you guys have any needs that aren’t being met, please let us (or someone) know. We would love to have God use us to encourage you like he has used you to bless and encourage all of us! You are not alone in this. We are praying for you moment by moment.
Little Greyson, Bob & Stacy,
I have been on vacation for the last week and 1/2 and decided to take a peek at your blog to see how Greyson was doing and check on his progress. I was very sad to see that you all have been going through so much. I wanted to let you know that you are in my thoughts and prayers.
It will be difficult to return to work and not see your smiling faces in room E, you know we all love your family! However, I know the staff in the PICU will also love you all very much! It would be impossible not to. You are both such wonderful , caring parents. Greyson is lucky to have such a terrific family.
Please give Greyson kisses from me and hug one another lots to make it through the up and coming challenges Greyson will face. Tell Greyson we are all thinking of him!
Teresa
Bob, Stac and baby Greyson, How hard to think of all you’ve been through the past week. God is good and he promises not to give us more than we can bear. But………we know it’s so hard and that you two are weary to the bone. Please know that all of us that love you are in that place of holding you up through our prayers and love. Please take care and rest assured that NOTHING is impossible with God. How blessed we all are by your faith!!!. God Bless you all three!!! Baby Greyson you are so loved. Aunt Fran