Well after waiting a few hours at home we couldn’t take it anymore. We set out again to go see Greyson. We still spent three hours in the car, but this time we made it in to see him. He continues to do well, his midnight blood gas (yep we were still there!) had a co2 of 61. Not spectacular but not bad. I got to hold him for about an hour and a half (you probably guessed that from the picture of Greyson and I waving to you all!) and then Stacy held him for about an hour. While we still can’t hold him all the time it is less tramatic to pick him up now and move him. This is largely because you don’t have to worry about the tube moving out of place. With the Cpap, if it moves off his nose you just put it back. So he has been breathing on his own (with the help of the cpap) for over 27 hours now! We also got to hear his cry. I’ll try to upload a quick video clip to share it with everyone tomorrow, if I can find the time. Work and school really cut into my Greyson time something terrible! Anyway his cry was pretty sad and tiny but we were so excited to hear it!
He is still on DEX but they cut his dose down and he will probably be getting off it completly soon. This will cause him to have to work harder to breath, and again that fact coupled with the reality that he will probably get tired means he will probably have to be put back on the vent before to long. Remember this is OK because the time off the vent helps him tremendously. Not only that it shows that he can do it! If he has to go back on the vent to rest it is just a part of the process. Every baby we have come to know in the NICU has had to go back on the vent after being extubated. That said every one of them is now upstairs or discharged from the hospital.
OK it’s extremely late. Go to bed everyone.
Oh one more thing. Greyson was awake for his midnight care time. He made a mess of his diaper, as well as all the wipes we put down under him when he went again. So after cleaning him up he was still looking all around and very awake. We decided to let him look at his Aquarium toy that his Aunts Tammy and Debbie got for him. He seemed pretty intrigued by it. OK, I probably should have saved that story and made it sound better………………..Oh well. Night all.
So glad to hear that you made it to the hospital after all. We have been praying that you would be able to get there and that Greyson has continued to do well on the C-Pap. Such a huge blessing for your little family. Its fun to hear that Greyson liked his toy too even if you could have made it sound better and beings that you kind of had a stressful day just getting to the hospital we will let this one slide. 🙂 Congratulations Greyson! He looks pretty cute lying in Dads arms waving to the camera. Merry Christmas everyone!
Glad to Greyson is holding his own. Hope the storms don’t get in your way too much.
We love reading Bob’s narratives, especially Greyson in the “big boy bed”.
Happy Holidays Westfall Family!
~The Gorskys