Greyson gets quite a few meds at 10am and 10pm as seen in the picture. The good news is in a couple more days he will basically just get these with one other med at 4am and 4pm.
So the fishing was fun (although I didn’t catch anything) and Stacy said they had a good day. We are a little concerned as Greyson’s secretions were a bit on the yellow side and he was running a little warm. We are keeping an eye on him and he seems to be OK. Pray with us that he doesn’t get sick or develop an infection as that is not the direction we want to be heading. You can also pray for us since we are on our own again as of 7pm tonight. We will not have nursing again until Monday morning at 7am. This wouldn’t be quite as drastic if I wasn’t a pastor (Sundays are kind of a big day for pastors) and could help out more. Soooo……I’m taking the evening shift and allowing Stacy to sleep hopefully till the wee hours of the morning when she will take over for me so I can catch a few winks before heading off to church in the morning. Hope the sermons good tomorrow to keep me awake!
So as I’ve stated before one of the hardest things with Greyson is knowing what is wrong. Many parents have told me you learn quickly which cries are for food, which are for diapers, which are for pain, and which are because you kid is a baby. Well if you have any resources on how to learn the differences we would love to have them! It might be because of the trach, or because he doesn’t actually cry much, but it is really hard to distinguish exactly what the problem is with Greyson (gas pain?). While it is not life threatening as parents we want to address those needs which are real, and allow him to work through his “personal preference” issues on his own. Oops got to go I hear a buzzer……………….