April Fools! Ha, I’m not including a picture! Or am I? Truth be told we forgot to get batteries and couldn’t take any new pictures. I’m not sure if I’m going to post an old one or not, we’ll see when I get done typing.
So it’s late so we are just giving a quick update. Big things for today are: 1. Stacy and I attended a g-tube (feeding) class and learned more about Greyson’s feeding tube and how to care for it or handle emergencies with it. 2. We changed his trach ourselves to the phily flex type (I pulled the old one out and Stacy put the new one in) it went really well. 3. Greyson sucked on a pacifier all on his own for a long time today (this is significant because he has always had to have someone hold the pacifier in because he spits it out). 4. They turned his oxygen back down to 30 percent (can’t remember if I put that in yesterday or not, they did it last night) and turned his rate down to 30 from 35.
We also got a call from the home nursing company so that is progressing. Hopefully thursday we will get the equipment company figured out and the pulmonary specialist will OK Greyson to go home (he’s meeting with us on Thursday instead of today). So we are moving forward! OK so here is an old picture you’ve seen, with some cool modifications. Enjoy.
There is no April fooling around! Greyson is getting better and better, thank you Lord. Thanks Bob for the picture. It is beautiful. Have a wonderful day!
Hey you guys what a thrill to think you’ll be going home soon!!!! We’re going to hold fast to that. Sounds like you two are getting to be regular medical assistants. I’m so proud that you’ve taken the bull by the horns,so to speak. Little Greyson is so lucky to have you for parents. It’s precious to see him waving his arms around. Know that your in our prayers, daily!!!
Love Aunt Fran