Bob was sick again today and couldn’t visit Greyson. I think Greyson must have missed his daddy a whole bunch because he just wouldn’t settle down. In actuality he was just very worked up today over everything that annoys him, CPAP, gas cramps, steroid creepy-crawlies, and heartburn. He didn’t get any canula time today because his blood gas number was too high. Poor little kid just couldn’t get a break today, everytime I got him settled down and calm he would last about 10 minutes and then start fussing again. Some of his fits were quite dramatic and he had mommy crying along with him. The good news is that he didn’t desat with these episodes even if they were prolonged. He was awake for most of the day so I expect he will sleep good tonight. With all the activity I didn’t get a picture today so this one is from yesterday. Please pray for Greyson to have a comfortable day tomorrow.
Stacy how hard it is to watch your little one not feel good and be unhappy and not be able to really do anything about it. Today was a bad day but I’m praying tomorrow will be a good day in that the dr. will be able to help Greyson after the test. Poor Bob, being sick and not being able to see Greyson on top of it.
Psalm 34:15 says: The eyes of the Lord are on the righteous and His ears are open to their cry.
Hi Stacy and Bob – This is Lisa (evening shift nurse). I really hope Greyson has a better day today. He was definitely uncomfortable yesterday, and I can’t imagine how hard that must be for you also. The positive side is that his noon gas was much better. He is a miracle – the most wonderful baby – and he is so fortunate to have such wonderful parents! You two are so amazing and truly an inspiration.
Hi Stacy – Your story reminds me of an experience I had with Ruth when she was in infant (seems like yesterday!!). She had been quite fussy during the night – I had fed her, changed her diaper, rocked her, soothed her and did everything I could think of to make her be OK. NOTHING WORKED. I felt so helpless. I cried buckets of tears out of despiration & frustration. It’s not a happy place to be – but thankfully God gives us hope and the knowledge that even when we don’t know what to do about a situation, He is still working behind the scenes.
Dear Kids, I so wish there was a way we could make this all better. We pray and pray and I know God is listening. I wish we could be there to support you all. Stacy I am so sorry for you not being able to comfort Greyson today. I am so sure he knew you were there holding him and helping him. He knows how much his mommy loves him. Bob I am so sorry you have been sick. I know how hard it is for you not being able to see your son. Hopefully the next few days things will improve. Just think he did have better noon gases. Grammie may have to come sooner than she had planned. Love you…Mom and Dad
I’m sorry this was such a bothersome day for Greyson and we will pray for a much, much better day tomorrow. That’s a lot for a little one and his mom and dad to go through.
We so enjoy the pictures and your chronicle of each day. I just hope and pray that one day soon you will be writing about Greyson’s graduation from the NICU and his promotion to home.
We pray that God heals Greyson’s lungs and that the doctor’s find a way to manage or abate the reflux. We are also praying for you, Stacy and Bob – for continued strength and wellness.
And, too, we all wish you a Happy Valentine’s Day tomorrow.
Be well and rest well Greyson and good night.
Judy & Jim, Laura & KJ
stacy, Bob and Greyson,
We are so full of prayers that Greyson will have a good night and a good
“SWEETHEARTS DAY” because he is the cutest little sweetheart we’ve ever seen….Stac, I’m so sorry it was such a hard day for the both of you..It is so hard to watch your child hurt or be unsettled and unhappy in any way and I know how your heart must have hurt…..Please remember how much we all love you and think of you so often….We care so much and just pray that God will work faster with Greyson’s lungs and just completely heal his little body and make him grow stronger so you can all be home together and he can have happy days…..All our love to you all……We pray tonight is a restfull time for you all. Bob get well real soon. Happy Valentine’s Day to you all…Uncle Wayne and Aunt Sue