So we got to the hospital at 11:30am and learned Greyson hadn’t had a very good night. His blood pressure had dropped very low and some other readings were not very postive. After running a bunch of tests it looks like the problem was they reduced one of his meds (it’s a steroid type but I can’t remember exactly, hydrochrodezone or something like that). Anyway yesterday they had cut the dose in half because he was doing so well and the goal is to get him off of it. Well it looks like he didn’t care much for that and has insisted he be put back on it, at the dose he was getting before. They did this before we got there and he had a pretty stable day. Due to this tramatic night he was taken off the “feedings” he was getting. Amazingly he was “fed” again at 4PM as he was doing much better. His blood pressure readings seemed stable the entire time we were there. Hopefully that is all there is to it. The next time they go to cut his dose they will do it much more gradually and hopefully get him off it slowly over time.
He didn’t gain any weight today, but didn’t lose any either. He remains at 630 grams right now. We would really like to see him get above his birth weight as tomorrow it will be three weeks. They have upped the amound of sugar he gets in his IV and his blood sugars have remained stable so that is good and should help him get the extra calories he needs to put on some weight. They also did another echo on him and the cardiologist said that while his PDA is still open, it is small and does not seem to be causing any problems. They will check it again in a couple weeks. Well that’s about it for now, the plan is for me to get to do the Kangaroo care on Wednesday as long as Greyson remains stable enough to do it. Stacy will not be able to buy me off with a pickle this time, although for an iphone maybe…..