
Greyson celebrated his first Valentines Day by getting a picture of his heart! Pretty fitting day for an echocardiogram don’t you think?
Bob and I both stayed home today. He is still coughing quite a bit and even though I don’t have any symptoms I am just too worried about transmitting something to Greyson to take the risk. Bob may have RSV which is extremely contagious and can be transmitted even before you know you have it. We have been working hard to keep me well with lots of handwashing and by generally avoiding each other. It made for a kind of lonely Valentine’s Day but we can talk to each other on the phone from opposite ends of the house.
We have been calling in at the middle and end of each shift today to see how things are going with Greyson. He has been sleeping a lot and has been cuddled by lots of baby rockers and nurses today when he was fussy. The doctor called tonight to give us the results of the echo. It looks like the right side of his heart is still the same as it was a month ago, a bit thickened due to increased work load from the Chronic Lung disease. The left side is changed as it is showing some thickening also due to the steroid use. They plan on keeping him on the CPAP full time and when his CO2 levels are good they will decrease the steroid use and try to correct this problem. Then we will just play the waiting game for him to get off the CPAP. In the big picture we know that God has Greyson in his care, that he is there with him all the time, and that he has a plan for all of this. When I get discouraged about spending more and more time in the NICU I try to remember that God’s plan is bigger than I can see. I pray that the Lord will use this time, Bob, me, and Greyson to reveal His love to those we meet there. He is already revealing it to us through His amazing, sustaining grace.