Greyson had fun (well maybe not as much as his parents, but he went with the flow as usual) as we tried out his big boy coat (thanks KJ and family!!!). It was so fun but made him look all grown up!
While this other picture looks basically like any other picture of Greyson, if you look at his trach you will notice (at least now that I’ve pointed it out to you) that Greyson has his cap on. Today Greyson went 3 1/2 hours with the cap on. Impressive! This helps give me the assurance that he will be ready for the sleep study in two weeks.
After feeding him tonight he was still playing in his pack and play. I went in to take a shower and Stacy was folding laundry. All of a sudden Greyson started belly laughing so Stacy went over to see what could be so funny. Greyson was just looking up at the ceiling laughing so hard he shook the pack and play. I don’t know if there was an angel making funny faces or what, but he sure was getting a kick out of it!
Thanks for all your prayers as we continue to draw ever closer to decannulation (getting the trach out) and what should be a much more “normal” life.
Wow, 3 1/2 hours, that is great. Greyson sure does look like a big boy with that coat. Looks like he has a little room to grow though. Wouldn’t it be fun to know what he saw that was so funny?
Take care
Love grandma Terry
Wow, thanks for the photos – we knew it would be too big, but there’s nothing like knowing the next size is ready and waiting. KJ thinks you’ll be easy to spot in orange and being all boy, if you spill, you always have a clean side.
We are so thankful you are doing so well – you are quite the boy.
As ever, you are all in our prayers,
KJ & family (:
I am so glad Greyson is doing so well with the cap. We all know you are going to do just great. I love the way you keep showing those drs. what you can do and nothing is going to keep you from improving. Of course we know that all the prayers going up on you behalf have something to do with that as well.
Love you
Grandma Terry