Actually Greyson can sit on his own (with a touch of support like the futon) but decided to lay down. He would have went to sleep but it was time for his trach care. It was really funny because as I was replacing his trach ties, I had my hand holding the trach leaving my palm right by his mouth, he started licking my palm! Stacy said he has done this to her before as well. It’s hard to focus on your job when you have a little child licking your hand!
Monday we went to the Dr. and basically all is well. They did restart one of the meds he was on as a precaution to make sure his kidney stone doesn’t get any larger. This should also help with his blood pressure which is just a touch high.
The pulmonologist gave us the OK to reduce his time on the vent. So unless his sats dip down during a nap he only has to be on the vent at night. Pretty cool! Everyone is amazed at how good he looks. Tomorrow my family comes to town and we start the P A R T Y!!!!
Yes the party will begin, unfortunately I don’t get to join the party until Saturday, but I’m sure there will be still partying going on. Greyson looks great and I can’t wait to get there. I wish his kidney stone would go away all by itself, great news about the vent though. Well just a few more days.
Love you Grandma Terry
How fun to have the other aunts, uncles, cousins, and Grandmas come to visit you Greyson. You will have lots of fun with them and so will your Dad and Mom. We will be anxious to see all of your new things you are getting for your birthday. Aren’t birthdays just great! and yours just keeps going….Love you all! Have a wonderful weekend! G and P