Well today was a day of firsts for Greyson. We tried him out in the hip hammock and he seemed to do OK with that. He was a little unsure as were we (I think for different reasons) but it went well and was fun to try him out in a new position. We also gave him his first bottle……well sort of. See Greyson needs to have a swallow study to see if he can begin to take food safely by mouth. The problem is we found out in order to do a swallow study he needs to be able to take around 2 ounces of fluid by mouth. Now without the swallow study how are we supposed to know if he can take 2 ounces by mouth? So tonight we decided that since we know it is possible to put saline down his trach (we have to do this sometimes to loosen up the secretions and we suction it right back out so it is safe) we decided to put sterile water in a bottle and see if he could drink some of that. So Stacy worked with him on the bottle while I stood ready with a suction catheter ready to suction on a moments notice. So how’d it go? No idea. We think he may have drank some, quite a bit definately wound up on his shirt, but he did keep the bottle nipple in his mouth better than his pacifiers so that was possitive. Basically we are going to have to keep working on it with him to see what he can do, so we can take him in and see what he can do!
Papa had to have a picture of this. He thought it was great. Greyson, it sounds like your mom and dad just like to get you wet! I think it is about time you work on getting them wet!! Look out. It sure would be fun to see him taking a bottle. Another new toy. Hope today is a great one. Love to you…Grammie and Papa
You guys are doing an amazing job with Greyson. He is so blessed to have such creative and fun parents. I miss you guys today and just can’t wait to see you all in action someday. We love you lots!
How fun to see little Greyson (growing all the time) strapped on Mommie. Looked like he was beginning to enjoy it! I’m like Keri, you guys are doing an amazing job. Were all so proud to be related to you. God Bless You Three and enjoy the holiday.
Stacy, You are just a natural at this. What a cute picture and bless all of you for trying things on your own…You are so brave. Greyson looks so cute. What a precious little sweetheart he is…GOOD JOB, Dad and Mom.
I love you all so much…Aunt Sue
A note before I call it a day.
I think that the swallow study – must be able to swallow first – is like looking for your first job – experience necessary. Since we all have jobs – I think your approach is the right one. Just do it.
To Great parents and their Great son – enjoy your long weekend.
Rest well young Greyson and be well.
Judy & Jim, KJ & Laura