Back to normal…wait you put me on the grass!

Well we made it home from the hospital Saturday night. Greyson was pretty happy to be home and definately feeling much better than he had been. Life was pretty uneventful and then today we tried Greyson’s Passy Muir valve and he has been tolerating it very well. This is great because as you can see from the video, it means we get to hear him again! His voice is a little hoarse still but really not too bad. We are so thankful that we are basically back to normal again. God is good and has been watching over all of us without a doubt!
Now we will wait and see how things go over the next month. If he is doing really well we will try to cap his trach from time to time (this means we put a cap on that doesn’t allow him to breath through the trach at all, letting us know if his airway is open enough for him to breath). This would be ideal, if he can’t breath with the trach capped then we will probably be looking at having the resection surgery done sometime in the future. So we are back to normal and back to the wait and see game that we just love so much. (in case you didn’t know, patience is not my gift!).