Well Stacy and I talked and almost felt like we shouldn’t share anything new today. Seems several of you took the last couple days pretty hard. Believe us we completly understand! God is still working in amazing ways so hang in there! On the one hand it is nice to know that so many of you are “right there with us”. On the other we feel bad that our life, and the life of our little one, is making you feel sad.
Anyway I was going to just tell a really funny story about my childhood, but I can’t remember any at the moment. So I will say this. Greyson’s c02 was still 60 last night. He continues to tolerate his feeding. He seems to be doing better since they slowed down how fast he gets the food, over an hour and a half instead of an hour. He will need to continue to compress his feeds though as when he comes home he can’t eat that slow or all we will be doing is feeding him!
He got new orders today so he will be on a new schedule with the nasal canula of six hours on and six hours back on the cpap. It will be interesting to see how he handles it. This would be a huge step forward if he can do it. I’d say we are holding our breath but Greyson has shown us that doing that can be unhealthy.
Are you guys going to be in trouble when Greyson gets to be about 12 and he looks at the blog and see what you did to him today!! The picture is adorable and we can all remember those precious times when changing and bathing our little ones. Yes, we all do take it hard when Greyson is having a bad day. But you just need to know that we are there with you, as is God, and it is good to have all this support. God is touching all of our lives and he is hearing all our prayers for a health baby and good cO2 levels. Just think several months ago it was minute to minute and now it is day to day. Greyson has come a long way. He is getting to be a big boy! Blessing to you all! Love Mom and Dad
Dont you dare stop sharing anything new just because the news is not what we might consider good. If it helps for you to “vent” and also to let us know how Greyson is doing use it as just that. We love reading the blog everyday…it helps us to stay connected to you and Stacy and even though we are not right there we never stop praying for you. I am sure that it is more difficult for you to try to put a positive spin on things when the news is CRAZY like the last couple of days have been, but you have been doing a great job! We want to be able to help if we can. We can band together here and just help each other through any news that you give us. We can’t just come over to you and give you a hug when we think you may need one. This is our way of hearing your need and reminding you of just how much you three mean to us. Thank you so much for keeping us informed. You would want to know about our kids too if they were having some sort of issue right? God will give us all the strength to endure because we have repeatedly asked for it! Hope that you have a great day today and remind Greyson how much we love him too!
Love,
Tam
My My he is getting so big. What a handsome son you have.
I agree with Tammy and Stacy parents
Please don’t stop sending us the news. It helps us pray correctly. Even though we know God know what needs to happen. I have been told that we should be specific in our prayers at times.
Wish I could see you and remember I am giving you a hug every day. Being able to read this makes me feel apart. I may cry and laught with you. I can’t express what this blog means to alot of us.
Love you guys so much.
That is what friends and family are for, is to share the good and the bad. Also it helps us to know how to pray specifically as well as to help others to know how God gets us through the bad times as well as the good. That saying, ” life is like a box of chocolates, you never know which one you are going to get”, that is what each day is like only we have to eat it and God will help get us through it.
Please don’t sugar coat your stories and leave out the bad, we need to see how God is working in good times and bad times.
Love you Mom
I can think of a funny thing in your childhood,such as when your sisters always made you the patient when they played dr. They had water balloons taped all over you so they could do surgery and when they cut into it, it would break and water would run all out as the blood.They probably used food coloring but I can’t remember. They used a guinea pig water bottle hooked up for your iv. Now that I think about it, it makes me laugh all over again. Maybe God was preparing you then for these days with Greyson. It always amazed me how good natured you were about everything they did to you. I must say the girls spoiled you as you grew up as well, so you got the good and the bad.
Love ya mom
Please know that we feel very connected to you three and feel you should share the good and the not so good, because that’s what life is. It would be an injustice, if you will, to “sugar coat” the down side when that’s when you need the love and support the most. I, too, believe God hears specific prayers and your updates allow us all to do that.
We looked back at the “missing pieces” yesterday and were awed by how far Greyson has come. And we have offered up special prayers this morning that God will continue to heal your precious son.
You three are the reason we meet here to offer words of love and support and I am awed by this wonderfully caring community.
Rest well and gain strength little one.
Love to you all,
Judy & Jim – Laura & Keirin “KJ”
We want you to know that we so appreciate you sharing your journey with us. You are my baby brother and have helped me through some very rough times and sometimes you helped when you didn’t even know. Let us be there for you! We are here to rejoice with you, cry with you and everything in between! Life is not neat and tidy and it definatly isn’t always good and/or fair so sometimes we get sad. The awesome thing is when life gets too hard, we have each other to help offer support and prayers on our behalf. This blog has been such a blessing to be close with you even when you are so very far away! That means the good and the bad. Your information helps us to stay connected and a part of what you are going through and an opportunity to watch and pray for you, Stacy and Greyson. Wouldn’t you do the same for us?
You are loved more than you will ever know!!!
He looks so chubby…i love it!! 🙂