Greyson was being a bit of a pill while his mom was holding him tonight. When the RT was in the room, he was doing great. Then she would take off her gown (Greyson is on what is called contact restriction so they have to put on a special gown and gloves before they come in his room so he doesn’t pass any of his bugs to other patients) and within a couple minutes of her leaving, he would set off his alarm on his vent. Nothing serious, usually he was just coughing and moving around. The funny thing is it would bring her back and he would keep alarming till she put on a new gown and new gloves and came in and by the time she would do all that, he would usually settled down and stop alarming. I think someone really likes to be the center of attention!
Today was another good day, not as good as yesterday as he slept for most of it, but it was good. We saw a couple friends from the NICU while having dinner and enjoyed visiting with them, and then one of the nurses from the NICU came up when her shift was over and visited with us. We are so glad that while we technically changed hospitals, it is still connected and we can still see our NICU friends from time to time. They will forever have a special place in our hearts and we will make sure that Greyson hears LOTS of stories about them.
Today while playing our old standby game, “Touch dad’s nose” we really think Greyson was starting to get the hang of it. He really acts like he is trying to figure out how to move his hand and arm in order to touch my nose. One time when I had shifted off to the side he looked like he was intensly trying to get his hand to move, but unable. Finally he jerked and just started waving his arm all around, finally hitting my nose in the process. It was very funny and a proud moment for us. He has a way to go but seems to be slowly figuring this out. This is probably complicated by the fact that one of the sedative drugs they are giving him wipes out short term memory. So he would probably be playing the professional version of the game, except he has to somewhat relearn the game everyday. This will all change once he recovers from the next round of surgeries and can get weened off some of his drugs. Well church is coming early tomorrow (yes I do understand that spring forward was last week, but it’s late!) so sleep well everyone.
We are so thankful for another good day! What wonderful news! We will continue to pray for what this week holds for you three and know that God is in control! Thanks for your update even in the early hours of the morning! We so appreciate them!!
God is so wonderful! Bless you three today! Love Mom
The whole family was at the altar praying today for Greyson and the week to come. It seems everytime all the family prays together at once for him, Greyson really makes a change for the better. It always does my heart to have us all together there praying as well. I just know really great things are going to happen this week as it is the week before Easter as well.
Love you
Grandma Terry and Grandma Great
We’re all so glad to learn of your wonderful weekend – what fun – and remember, he might have slept more yesterday than the day before, because you wore him out. You never know.
We are praying for Gods’ continued healing touch as Greyson undergoes the surgeries and for continued strength for you, Stacy and Bob.
You are all in our thoughts and prayers.
Rest well young Greyson and be well – mom and dad, too.
Judy & Family