No I’m not choking Greyson. He has enough trouble breathing! He was pretty upset so I sat him up and held him with my left hand while I patted him with my right. He woke up and started looking all around for quite awhile. I had to keep my hand like this to ensure he wouldn’t decide to do anything crazy with his head as he looked all around the room.
Today had a bit of a rough start. Nothing particularly with Greyson but simply the stress of the situation. Life can be hard to juggle sometimes and the stress of it all can be hard to cope with. This morning we were really struggling with some issues and prayed together before I (Bob) left for work. We thanked God for blessing us with Greyson, and for the way He has given us the strength for each day. We thanked Him for the amazing way he has provided for us, and asked Him to keep our focus and trust on Him, and Him alone. Well before I could even get to work Stacy called me with some incredible news that related to our previous tension. Once again God has reminded us that He is in control and that we can completely trust Him.
So what became of all the blood gas results from yesterday? Not a lot. They did another blood gas at midnight and his c02 was back down to 56. The Dr. did change his canula order so he is now on cpap for 8 hours and nasal canula for 4. This seems like a big step backwards but hopefully it will help Greyson in the long run. He has been through so much we just wish we could do something to make it better for him.
On a humorous note Greyson got another bath today and decided to pee all over Stacy and the floor before she got him into the water. I was out making a couple calls for work and missed it but was glad that once again it was not me that Greyson went on. The part of the bath I saw made it evident once again that Greyson loves bath time.
Greyson got another chest x-ray today and it showed his lungs were still quite white and cloudy. This indicates the chronic lung disease as they should be black. We are not sure if it is worse than the last one, but definately not any better. The Dr. has put in a consult request for the neonatal pulmonologist to come and look at Greyson. We knew Greyson would see him when he moved upstairs as he follows all the babies who go home on oxygen, but are not sure what will happen with him seeing Greyson now. We are hoping he has some good news or a good plan to help Greyson with his breathing as we just haven’t heard much encouraging words regarding his chronic lung disease. Hard to believe Greyson is 17 weeks old tonight. He’s come a long way, and we cherish every moment we get to spend with him, which unfortunately is never enough.
Bob and Stacy,
Thank you for your faith in our amazing God. That alone is such an inspiration to all of us that look so forward to hearing from you each and every day. Thank you that you look to Him and keep your focus on Him in spite of everything else. Our pastor has been talking about gazing at our Lord and glancing at our circumstances and you are doing that. What a wonderful testimony you are to us all….We are so thankful for little Greyson and just pray that good news will come in abundance today and that he will be more settled and not fussy. What a precious little man he is and he has blessed so many. Once again, thanks so much for sharing. I love you all. Aunt Sue
Greyson sure loves to sit up and look around as well as to bounce. He looks so cute in this picture. I am hoping the pulmonologist will have some positive advice. I know Greyson is going to get this breathing thing down, he is just not doing it as fast as we want. He will have so many birthdays, like today he is a week old from his actual due date, but actually he is 2 days away from being 4 months old from when he was born. Then he will have another day to celebrate the day he goes home. I know his cousins would really like that and try to use it to get more presents. I like Joshua 1:9 Be Strong. Banish fear and doubt. Be strong and courageous. Do not be terrified for the Lord your God will be with you.
Stacy and Bob,
I find I didn’t know much about infants and chronic lung disease, so I’ve been doing some internet research.
Know that we continue to pray that God heals Greyson’s lungs and that he is able to join you at home in the near future.
Greyson, sleep well tonight little one and may tomorrow and the ones that follow, be better and better.
Love,
Judy and Jim