{"id":70,"date":"2007-11-29T22:07:20","date_gmt":"2007-11-30T06:07:20","guid":{"rendered":"http:\/\/westfall.raquet.net\/?p=70"},"modified":"2014-01-31T07:00:53","modified_gmt":"2014-01-31T07:00:53","slug":"tough-days","status":"publish","type":"post","link":"https:\/\/westfall.raquet.net\/?p=70","title":{"rendered":"Tough Days"},"content":{"rendered":"

\"November<\/a><\/span><\/p>\n

Sorry for no posting anything yesterday, it was the beginning of a long night followed by a longer day.\u00a0 Greyson’s c02 numbers have continued to climb.\u00a0 They stopped weening him in the hopes that they would come down and they could begin weening him again.\u00a0 Unfortunately this didn’t happen.\u00a0 So they increased his vent settings and the numbers got better for a short while and then started to rise again.\u00a0 Last night the Dr. talked to us again about using the steroids.\u00a0 It was his opinion after reviewing Greyson’s chart that if they were ever going to be used, now was the time to do it.\u00a0 We didn’t want to rush into this so we decided to wait and see how his midnight gas numbers were.\u00a0 They were really bad.\u00a0 His c02 had risen to 87 (this number should stay below 70).\u00a0 They raised his vent some more and eventually got the numbers into the 60’s.\u00a0 This also meant that he was now back to being pretty much maxed out on the vent.\u00a0 After talking to the Dr. this morning and seeing his blood gas numbers, not to mention walking in while he was de-sating bad and not coming back up for a long time despite being bagged, we elected to start the steroid treatment.\u00a0 He received his first dose at 4pm today.\u00a0 At 6pm his blood gas came back worse than ever.\u00a0 His c02 was now 97.\u00a0 They increased the vent again to a PIP (pressure) of 30, 2 above what they want to use with this ventilator as the pressure can do significant damage to the lungs.\u00a0 An hour later his c02 had come down to 65.\u00a0 They will leave him at this setting and recheck how he is doing at midnight.<\/span><\/p>\n

The steroids will be in strong amounts for up to three days.\u00a0 Whether or not they work they will begin weening him off of them at that point.\u00a0 This is to minimize the negative side effects that come with this drug.\u00a0 We are praying 1.\u00a0 That we made the right decision to use them, although it looks like we were almost out of options 2.\u00a0 That God will work through this drug to give Greyson the push he needs to get off the ventilator so his lungs can heal naturally.\u00a0 and 3.\u00a0 That God will protect him from any negative side effects the drug may have.<\/span><\/p>\n

So it was a rough couple days but I have to tell you how today ended (at least at the hospital, I’ll be staying up doing homework late and waiting to call in and find out his midnight blood gas).\u00a0 Anyway during his 8pm care time he was VERY awake and alert.\u00a0 His eyes were open and he was looking all around.\u00a0 I put my face down and started talking to him.\u00a0 For the first time he looked straight at me and even when he looked away came right back to look me straight in the face.\u00a0 I noticed a hair (long one must have been Stacy’s as mine are……..REALLY short) coming from his lip.\u00a0 I started the process of dabbing water on his lip and trying to wipe it off.\u00a0 It was stuck so much that when I pulled on it his whole lip came with it!\u00a0\u00a0 So I spent over 5 minutes working on this and talking to Greyson the whole time.\u00a0 Throughout the whole deal he kept his eyes right on me!\u00a0 Even the nurse kept commenting on how intently he was looking at me.\u00a0 Stacy got in there after I got the hair off and finished getting the lip goobers off and he pretty much looked at her the whole time too!\u00a0 It was so great to have gone through this major stress with him de-satting, the bad gas numbers, and then to have Greyson cheer us up so much simply by looking at us intently.\u00a0 <\/span><\/p>\n

Today was a rough day, but tomorrow is a new one.\u00a0 As always God continues to grant us just enough strength to make it through the day.\u00a0 Thanks for all your love and prayers for us!<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"

Sorry for no posting anything yesterday, it was the beginning of a long night followed by a longer day.\u00a0 Greyson’s c02 numbers have continued to climb.\u00a0 They stopped weening him in the hopes that they would come down and they … Read More →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[465],"tags":[],"class_list":["post-70","post","type-post","status-publish","format-standard","hentry","category-current"],"_links":{"self":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts\/70","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=70"}],"version-history":[{"count":2,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts\/70\/revisions"}],"predecessor-version":[{"id":4899,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts\/70\/revisions\/4899"}],"wp:attachment":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=70"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=70"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=70"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}