{"id":552,"date":"2008-05-08T21:27:30","date_gmt":"2008-05-09T05:27:30","guid":{"rendered":"http:\/\/westfall.raquet.net\/?p=552"},"modified":"2008-05-08T21:27:30","modified_gmt":"2008-05-09T05:27:30","slug":"i-think-this-tune-needs-some-electric-guitar","status":"publish","type":"post","link":"https:\/\/westfall.raquet.net\/?p=552","title":{"rendered":"I think this tune needs some electric guitar."},"content":{"rendered":"

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So here we are at the end of the day writing from Children’s hospital in Seattle.\u00a0 Even with the change of scenery the needles are still unpleasant.\u00a0 Unfortunately we still don’t have a lot of definitive answers to all that is going on with Greyson, but a couple of the early signs are not so pleasant.\u00a0 Not life threatening, just extremely painful.\u00a0 I’m talking about the fact that it looks like Greyson has developed kidney stones.\u00a0 Having lived through kidney stones with his mom a few times (like on our wedding day!) I can assure you they are not a pleasant thing at all.\u00a0 We haven’t talked to the Dr.’s yet about this, but we were both here when they did the ultrasound of his kidneys and the tech was definately measuring a few objects that were inside his kidney.\u00a0 This coupled with the information that he was dehydrated and had excess calcium seems to lend support to kidney stones as the diagnosis for the bloody urine.\u00a0 If that is the case it is good that we have a diagnosis, but bad that it is something that can be so painful.<\/p>\n

As for the other issues they seem to be better.\u00a0 His trach aspirate came back with some stuff in it, but no infection and basically I am told the stuff that was in it is pretty much what you would expect to be hanging out in a trach (Gross!).\u00a0 The initial results from the lumbar puncture do not show infection, but they have to wait to see if anything grows out.\u00a0<\/p>\n

His metabolizism was out of whack but that seems to be coming into line slowly.\u00a0 So we are hanging out right now hoping everything stablizes and we can go home.\u00a0 As I type this knowing about calcium buildups in his kidneys it certainly seems like he is experiencing the pain of stones.\u00a0<\/p>\n

On a positive note one of the Dr’s that Stacy talked to today was going to call one of Greyson’s Dr’s and see if we can get him off one of his diretics.\u00a0 One of his diretics is very potent and can wreck havoc on his metabolism if we are not careful.\u00a0 This could also lead to becoming dehydrated which can impact the production of stones.\u00a0 He also talked to her about Greyson’s lungs and was very encouraged by what he was seeing.\u00a0 His X-rays looked good and he was going to talk to Greyson’s Dr (yes again) about trying him for some short periods (probably minutes, but anything is good!) off the vent to see how he would do.\u00a0 We will see what becomes of this.\u00a0 The important thing is that several people have said that his lungs did not look like what they would expect a preemies lungs with chronic lung to look like (not perfect, but not what they would expect) and they didn’t sound like they would expect a baby with chronic lung to sound like.\u00a0 All this means that he is doing pretty well on the vent and his lungs seem to be healing and growing now that he is on it.\u00a0<\/p>\n

So we press on asking God to touch Greyson and free him from the pain he is experiencing.\u00a0 Having just weened him off of the narcotics a week ago we are not anxious to see him started on anything powerful again, yet are not enjoying watching our little guy suffer either.<\/p>\n

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So here we are at the end of the day writing from Children’s hospital in Seattle.\u00a0 Even with the change of scenery the needles are still unpleasant.\u00a0 Unfortunately we still don’t have a lot of definitive answers to all that … Read More →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[465],"tags":[],"class_list":["post-552","post","type-post","status-publish","format-standard","hentry","category-current"],"_links":{"self":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts\/552","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=552"}],"version-history":[{"count":0,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts\/552\/revisions"}],"wp:attachment":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=552"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=552"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=552"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}