{"id":497,"date":"2008-04-18T22:08:03","date_gmt":"2008-04-19T06:08:03","guid":{"rendered":"http:\/\/westfall.raquet.net\/?p=497"},"modified":"2008-04-18T22:08:03","modified_gmt":"2008-04-19T06:08:03","slug":"no-waiti-meant-tell-me-5-stories-and-then-ill-go-to-bed","status":"publish","type":"post","link":"https:\/\/westfall.raquet.net\/?p=497","title":{"rendered":"no wait\u2026.I meant tell me 5 stories and then I\u2019ll go to bed."},"content":{"rendered":"<p><a href=\"http:\/\/westfall.raquet.net\/wp-content\/uploads\/2008\/04\/april-18-061.jpg\" title=\"april-18-061.jpg\"><img decoding=\"async\" src=\"http:\/\/westfall.raquet.net\/wp-content\/uploads\/2008\/04\/april-18-061.thumbnail.jpg\" alt=\"april-18-061.jpg\" \/><\/a><\/p>\n<p>Well the big 48 hour live in is over, and I think we have survived.\u00a0 Honestly I have to say that was not easy.\u00a0 We decided that rather than trying to sleep in the room with Greyson, one of us would go to the parent apartment and sleep and then come and relieve the other one.\u00a0 It was a perfect plan well executed.\u00a0 The only glitch was that it required sleeping during periods of the day.\u00a0 For instance Stacy was to relieve me at 4am and I was going to go to the apartment and sleep as late as I could.\u00a0 Then I would relieve her and she would sleep as much as she could before spending the afternoon together.\u00a0 The problem of course was construction at the hospital.\u00a0 It was so loud it was like a jack hammer was going off right outside our window.\u00a0 Oh wait, I mean it was loud because a jack hammer was going off right outside our window!<\/p>\n<p>Then there was the fact that Greyson was not always in a super mood.\u00a0 The hard thing with him is deciding if it was drug induced (he&#8217;s still on his ativan, methadone wean), if he is having a problem (something wrong with his trach, needs suctioning)\u00a0 If he&#8217;s gagging or trying to throw up (which is made difficult by his fundoplication), if he pooped (easy one, you can smell it!) if he has a wet diaper (also easy, just check it!), if he&#8217;s hungry (hard to tell if he&#8217;s got hunger pain since he&#8217;s really never been hungry) or if we put the food in to fast causing problems (we are now gravity feeding him so the higher you hold the syringe the faster it goes in, which can be REALLY fast if you hold it straight up, but I&#8217;m not telling how I know that!) or if the kid is just being a baby (literally and figuratively, ha!).\u00a0 All in all though we feel pretty good about the experience.\u00a0<\/p>\n<p>Now we are home tweaking his room.\u00a0 The nice thing about how this worked out is we get to sleep some before he comes home as well as set up all the home equipment before he arrives.\u00a0 This will allow us to make tweaks to the plan before he is actually here with us.\u00a0<\/p>\n<p>Stacy read Greyson a few stories, I think he wanted more but as new parents we definately don&#8217;t want to get caught in that trap.\u00a0 So everything is pretty much ready and in place for him to come home.\u00a0 Now it&#8217;s just hanging out till they say we can leave (early next week).<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Well the big 48 hour live in is over, and I think we have survived.\u00a0 Honestly I have to say that was not easy.\u00a0 We decided that rather than trying to sleep in the room with Greyson, one of us &hellip; 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