{"id":464,"date":"2008-04-04T23:35:22","date_gmt":"2008-04-05T07:35:22","guid":{"rendered":"http:\/\/westfall.raquet.net\/?p=464"},"modified":"2008-04-04T23:35:22","modified_gmt":"2008-04-05T07:35:22","slug":"i-love-you-mommy","status":"publish","type":"post","link":"https:\/\/westfall.raquet.net\/?p=464","title":{"rendered":"I love you mommy!"},"content":{"rendered":"

\"april-3-059.jpg\"<\/a><\/p>\n

Greyson really does love his mom.\u00a0 She puts in a lot of effort to give him all his medicines, hook up his feeds (he’s now getting all his food over 1\/2 an hour!\u00a0 OK wait not ALL his food but three hours worth at a time), etc. etc.\u00a0 I think I’ll give her a gold star as a reward.<\/p>\n

OK I’m sitting at my computer at home trying to remember all that happened today.\u00a0 We are set up with the home health supply company who will be providing the ventilator.\u00a0 The guy is coming out tomorrow to do the home inspection and get us all squared away.\u00a0 He said it usually takes 10 days for them to get everything ready and delivered here as well as set up.\u00a0 So that could mean we are 10 days away from Greyson coming home.\u00a0 Then again who really knows?\u00a0 We haven’t heard any more from the nursing side so we will have to do some checking if we don’t hear something by Monday.\u00a0<\/p>\n

The culture came back on Greyson’s g-tube and he has a staff infection.\u00a0 They already have him on antibiotics for it so hopefully it will get better in the next day or so.\u00a0 It is red and obviously uncomfortable for him.\u00a0 The surgeon still has to come look at it to see if it needs to be drained.\u00a0\u00a0<\/p>\n

In other news Greyson’s trach seems to be a bit small for him.\u00a0 He is probably not ready for the next size up, but has quite a leak with this size.\u00a0 They fixed it by injecting more water into the cuff and that seems to be working.\u00a0 In case you are not familiar with cuffs (for trachs not on shirts) it is basically like a little water balloon that inflates around the trach tube in the throat to seal it off.\u00a0 This is all good but could cause a problem as we have two other philly flex trachs that are the same size.\u00a0 We change them once a month so if it is almost to small now, will the others work in three months?\u00a0 They (hospital staff) will work with this and figure it all out.\u00a0 That’s why we pay them the big bucks.\u00a0 Should we be worrying about him outgrowing things?\u00a0 You bet!\u00a0 We weighed him today (which we haven’t done in quite awhile) and he was 13 and 3\/4 pounds!\u00a0 That’s right, almost 14 pounds!\u00a0<\/p>\n

We got Greyson’s new stroller today.\u00a0 We had to buy a new one that is a double (yeah we have twins!).\u00a0 Actually we got a double so Greyson can go in the front, and all his gear can go in the back seat.\u00a0 This\u00a0is going to be very\u00a0necessary since Greyson will not be traveling light.\u00a0<\/p>\n","protected":false},"excerpt":{"rendered":"

Greyson really does love his mom.\u00a0 She puts in a lot of effort to give him all his medicines, hook up his feeds (he’s now getting all his food over 1\/2 an hour!\u00a0 OK wait not ALL his food but … Read More →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[465],"tags":[],"class_list":["post-464","post","type-post","status-publish","format-standard","hentry","category-current"],"_links":{"self":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts\/464","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=464"}],"version-history":[{"count":0,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts\/464\/revisions"}],"wp:attachment":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=464"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=464"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=464"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}