{"id":4510,"date":"2008-04-09T21:58:19","date_gmt":"2008-04-10T05:58:19","guid":{"rendered":"http:\/\/westfall.raquet.net\/?p=474"},"modified":"2008-04-09T21:58:19","modified_gmt":"2008-04-10T05:58:19","slug":"hey-mom-check-out-my-watch-rattle-2","status":"publish","type":"post","link":"https:\/\/westfall.raquet.net\/?p=4510","title":{"rendered":"Hey mom, check out my “watch” rattle."},"content":{"rendered":"

\"april-9.jpg\"<\/a><\/p>\n

If we had to sum up today with one word it would be, “playtime!”.\u00a0 Greyson was awake A LOT today and was very playful.\u00a0 I stayed the night with Stacy in Tacoma (we now live in different towns in case you didn’t know) and got to spend the day here with them.\u00a0 Today was supposed to be a very big day for a couple reasons, one of which unfortunately never materialized.\u00a0 So we’ll save that for another day.\u00a0 We think Greyson figured out that the wrist rattle was making noise when he moved his arm, because all day he has been swinging his arms around (and hitting himself in the face, which is really funny).\u00a0<\/p>\n

The other reason was because we were having this big care conference.\u00a0 Well we had it, but it wasn’t what we were expecting.\u00a0 Of course I’m not sure what we were expecting since we’ve never had one before, but this was not it.\u00a0 The one thing that did come out of it was planning a tentative date for discharge.\u00a0 While this is great, the one down side is this was just with the home ventilator supplier, so the date will not be certain until we have nursing lined up (pray for this as right now they don’t have any nurses lined up, the couple that they thought they had fell through) and the Dr. signs off on him going home.\u00a0 So we now have a couple dates, but I won’t release them as there are to many other factors to make them very concrete.<\/p>\n

We did go shopping tonight and I was met face to face with the “real” cost of having a child.\u00a0 Today was the day it hit me that once Greyson comes home, insurance will no longer pay for all the “incidentals”.\u00a0 Things like diapers, wet wipes, and a host of other things that we simply grab when we need them, will soon be things we will have to\u00a0pay for before we can grab them.\u00a0\u00a0Of course if this means he is home I am more than happy to pay for whatever he needs.\u00a0\u00a0<\/p>\n

OK so here is\u00a0our scary stories for the day.\u00a0 Last night Stacy and I did Greyson’s\u00a0trach care as we do\u00a0almost every night.\u00a0 No big deal we are getting pretty comfortable with it.\u00a0 He was pretty much going to sleep and we were watching him when he started to de-sat.\u00a0 He got down to the 70’s so I decided to bag him.\u00a0 We got him back up to 100 percent and Stacy suctioned him and all was well, but when we put him back on the vent down he went again.\u00a0 By this time the nurse and RT were in the room.\u00a0 They felt like we had it under control but helped us track down the problem.\u00a0 This took awhile but on a hunch the nurse finally took out the end tital c02 sensor.\u00a0 Once she did his volumes doubled (a good thing) and his stats went right back up.\u00a0 The sensor is new and it seems it had gotten clogged up and was not allowing him to breath correctly.\u00a0\u00a0 So that was the first scary part of the night (actually it wasn’t that scary we simply did what we were supposed to do until the RT helped us solve the problem, he never turned blue so it was all good!)\u00a0 But there is more.\u00a0\u00a0We heard today that sometime last night (after we left to go to the parent appartment) the RT came into the room because she heard Greyson\u00a0crying (because Greyson’\u00a0s trach is cuffed you shouldn’t hear him cry as that means he is not getting a\u00a0good seal).\u00a0 Anyway she came in and\u00a0Greyson was crying pretty loud, and\u00a0when she looked she saw that his trach had come almost all the way out.\u00a0 The\u00a0“cuff” was staring her in the face!\u00a0\u00a0\u00a0Not good at all since the cuff should be down in his esophogus.\u00a0 She got a bit freaked out but got him all back together.\u00a0 This is why it is so important to ensure the trach ties are on tight!\u00a0\u00a0<\/p>\n

Tonight when we did his trach care we took some extra precautions and wrapped the ties with duct tape, so I think it will be a safe night (ummmm I am assuming everyone knows I’m kidding here).\u00a0<\/p>\n","protected":false},"excerpt":{"rendered":"

If we had to sum up today with one word it would be, “playtime!”.\u00a0 Greyson was awake A LOT today and was very playful.\u00a0 I stayed the night with Stacy in Tacoma (we now live in different towns in case … Read More →<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-4510","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts\/4510","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=4510"}],"version-history":[{"count":0,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts\/4510\/revisions"}],"wp:attachment":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=4510"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=4510"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=4510"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}