{"id":4487,"date":"2008-02-17T10:27:50","date_gmt":"2008-02-17T18:27:50","guid":{"rendered":"http:\/\/westfall.raquet.net\/?p=357"},"modified":"2008-02-17T10:27:50","modified_gmt":"2008-02-17T18:27:50","slug":"id-like-the-king-size-bed-and-a-room-with-a-view-please-2","status":"publish","type":"post","link":"https:\/\/westfall.raquet.net\/?p=4487","title":{"rendered":"I’d like the king size bed and a room with a view please."},"content":{"rendered":"

\"feb16-009.jpg\"<\/a>\u00a0<\/p>\n

So what has been our modo through this whole experience?\u00a0 God will give us enough grace for each day.\u00a0 If one day is bad, remember that tomorrow is a new day.\u00a0 Well I certainly feel that way today.\u00a0 Greyson’s heart rate is back to normal and his blood gas is much better.\u00a0 While today feels better it is not without its challenges.\u00a0 Greyson has develped an infection which is never a good thing but they have him on antiobiotics now.\u00a0 The sad part to us is really the looks of the situation.\u00a0 Not the “perspective” of the situation, but literally the looks of it.\u00a0 It is hard to see him once again with many tubes coming out of him and hooked up to so many IV machines.\u00a0 While this looks bad it is not as bad as it seems.\u00a0 Aside from the risk of infection that comes from any IV, he is receiving only a few more medicines right now.\u00a0 It is just a change in delivery method.\u00a0 Greyson is very sedated right now and will be sleeping peacefully probably for a day or two.\u00a0 As they work to get him past this acute crisis moment they want him to stay calm and pain free, as do we!\u00a0 Another positive aspect is they are probably going to try to begin feeding him again (they stopped the feeds because of all that was happening leaving the possibility that he would have to go back to IV nutrition for awhile, we are very happy it doesn’t look like that is going to be necessary).<\/p>\n

They intubated him through his nose this time, so hopefully when he does wake up it will be a little more pleasant not having a tube in his mouth, but we’ll see how that goes when he becomes more alert.\u00a0 Another change is that he is receiving nitric oxide gas as well as oxygen to help with the hypertension.\u00a0<\/p>\n

So praise the Lord things are a bit better.\u00a0 We still have a way to go but feel he is again in the right place at the right time to receive the best treatment.\u00a0 As you can see he is now in a big big big boy crib and has his own room.\u00a0 We are excited that he has a window and will receive a little sunlight, something he has never known so far (well in room B he was across the room from windows, but he’ll get much more light now.\u00a0 We are grateful for this as well because it was not good for the mood in room E to always be so dark and without any natural light (room E had no windows to outside, kinda like my office but that’s another story….).<\/p>\n","protected":false},"excerpt":{"rendered":"

\u00a0 So what has been our modo through this whole experience?\u00a0 God will give us enough grace for each day.\u00a0 If one day is bad, remember that tomorrow is a new day.\u00a0 Well I certainly feel that way today.\u00a0 Greyson’s … Read More →<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1],"tags":[],"class_list":["post-4487","post","type-post","status-publish","format-standard","hentry","category-uncategorized"],"_links":{"self":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts\/4487","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=4487"}],"version-history":[{"count":0,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts\/4487\/revisions"}],"wp:attachment":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=4487"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=4487"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=4487"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}