Well the day has not been a very good one as you have\/can read by my last post.\u00a0 Unfortunately it is still a very difficult day as we approach the end of it.\u00a0 Something happened while Greyson was ventilated (probably he worked himself into a frenzy) and at one point he managed to unlock the lock that keeps his breathing tube in place.\u00a0 About that time he got so worked up that his heart rate was soaring.\u00a0 He spent most of the day with his poor heart beating at about 220 beats per minute.\u00a0 This and everything else that was going on also lead to very bad blood gasses.\u00a0 After working with him all day the Dr. talked to us about moving Greyson to Marie Bridge Hospital (this hospital is connected to the one Greyson was in, but has a PICU or pediatric intensive care unit)\u00a0 They work with older kids and the types of breathing issues Greyson is now struggling with.\u00a0 So we have just made it to the new hospital and they are working on Greyson right now.\u00a0 They need to put a different type of tube down his throat to ventilate him better.\u00a0 We believe we are in the right place but were unaware of how hard it would be to leave those who we have grown to love and come to a new place with a new staff.\u00a0 We are praying they will be able to help Greyson and he will be able to begin recovering again.\u00a0 It was hard to watch Greyson go from nothing but a cpap on him, back to IV’s, ventilator tubes, etc.\u00a0 While it feels like a giant step back to three months ago, it is where we are.\u00a0 Now we must learn to fit in to this new system.\u00a0<\/p>\n
Stacy and I are exhausted as we arrived at the hospital at 6am this morning.\u00a0 They have arranged for us to stay overnight in an apartment here so we are grateful that we will not have to go very far as we attempt to make this stressful adjustment.\u00a0 We want to thank everyone for your prayers and words of support, they are an incredible source of encouragement to us right now.<\/p>\n","protected":false},"excerpt":{"rendered":"
Well the day has not been a very good one as you have\/can read by my last post.\u00a0 Unfortunately it is still a very difficult day as we approach the end of it.\u00a0 Something happened while Greyson was ventilated (probably … Read More