Today has been a very difficult day.\u00a0 Greyson went back on the ventilator at 7 this morning.\u00a0 We were very thankful that Stacy and I were able to get here in time to give him some love before this happened.\u00a0 Overal he took it pretty well although he has to be sedated quite a bit to keep him from fighting against the vent. To give a quick summary, his c02 levels kept rising and teh steroids were beginning to impact his heart.\u00a0 His heart was also being impacted from the extra work it had to do because of the chronic lung disease.\u00a0 If left alone this could eventually lead to heart failure or\u00a0a host of other problems.\u00a0 So after discussing the options with the Dr., the ventilator was the only real option.\u00a0 So what will happen now is Greyson will get a tracheotomy (surgery to put a tube in his neck that will connect to the ventilator).\u00a0 Once his blood gas is stable we will work on eating a little.\u00a0 If he can eat all he needs (unlikely in this type of scenario) he will then come home.\u00a0 If he can’t eat enough, he will get a tube put in his stomach and we will let him eat what he can and give him the rest through the tube.\u00a0<\/p>\n
While this seems like an incredible negative outcome, it will probably mean he will be coming home much sooner than if we had been able to continue going the way we were (assuming we could have continued that way, which we can’t due to the rising c02 levels).\u00a0 So pray for Greyson to stabilize on the vent, to allow it to work, that the trach surgery will go smoothly, that Greyson will thrive, and that mom and dad will be able to cope with it all.\u00a0<\/p>\n
It is amazing the support we have received from the NICU staff.\u00a0 They really have become friends in the time we have been here, and we are so grateful for them and all they do for us.\u00a0 We certainly can’t claim to understand why God has chosen not to simply touch his lungs, but we are so grateful for all the miraculous ways he has touched Greyson.\u00a0 We know that God can and will use this experience for His glory, and as always that He will give us the strength and Grace to make it through it.\u00a0<\/p>\n","protected":false},"excerpt":{"rendered":"
Today has been a very difficult day.\u00a0 Greyson went back on the ventilator at 7 this morning.\u00a0 We were very thankful that Stacy and I were able to get here in time to give him some love before this happened.\u00a0 … Read More