{"id":335,"date":"2008-02-06T23:48:18","date_gmt":"2008-02-07T07:48:18","guid":{"rendered":"http:\/\/westfall.raquet.net\/?p=335"},"modified":"2008-02-06T23:48:18","modified_gmt":"2008-02-07T07:48:18","slug":"got-my-own-bouncy-chair-hay-eey","status":"publish","type":"post","link":"https:\/\/westfall.raquet.net\/?p=335","title":{"rendered":"Got my own bouncy chair, hay-eey"},"content":{"rendered":"

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Today we took in Greyson’s own bouncy chair for him to use.\u00a0 One of the nurses said he might like the vibrations that it has as apparently kids with chronic lung disease often really like shaking.\u00a0 He seemed to like it although he did have that “OK now what is THIS!” look on his face for almost the whole time he was in it.\u00a0<\/p>\n

Today we got to talk to a couple that we met in the NICU.\u00a0 Their baby has progressed to the point where they have moved upstairs so it was nice to have the chance to see them and talk about how things are going.\u00a0 It is sad that you meet people while you are in the same room, and then they move and you don’t get to see them or how they are doing.\u00a0 Unfortunately it is also a reminder that Greyson doesn’t move much!\u00a0 To date he doesn’t hold the record for the longest NICU stay (although we are certainly on the long timer list) but might hold the record for the fewest moves.\u00a0 In 19 weeks he has only been in three different spots, and one of those he only stayed for a day.\u00a0 It leaves you with the feeling that everyone else is moving and you are not.<\/p>\n

We met with the Dr. today and talked about Greyson’s progress and prognosis.\u00a0 Basically the answers were what we were expecting, it is just going to take him a lot of time.\u00a0 The one new thing was that they ordered a consult with a gastrointestinal specialist.\u00a0 It appears Greyson is having more reflux and they want to have him evaluated to see if there is a need to treat him more aggresively.\u00a0 Reflux can have an impact on respiratory function, and even on the lungs ability to heal.\u00a0 Even if it doesn’t help with Greyson’s breathing, it would be nice to get it under control as it is very clear when he refluxes as it causes him a great deal of pain.\u00a0 It is horrible to watch as there is nothing you can do and he looks at you with eyes that say, “why aren’t you making this extreme pain go away?”.\u00a0 He’s a brave and tough guy to endure all that he has to on a daily basis.\u00a0 We continue to pray that God will place his healing hand on him, but also that God will be with him to comfort him until he gets better (well of course we pray Greyson will always know God’s presence but you get what I’m saying).\u00a0<\/p>\n","protected":false},"excerpt":{"rendered":"

Today we took in Greyson’s own bouncy chair for him to use.\u00a0 One of the nurses said he might like the vibrations that it has as apparently kids with chronic lung disease often really like shaking.\u00a0 He seemed to like … Read More →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[465],"tags":[],"class_list":["post-335","post","type-post","status-publish","format-standard","hentry","category-current"],"_links":{"self":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts\/335","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=335"}],"version-history":[{"count":0,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts\/335\/revisions"}],"wp:attachment":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=335"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=335"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=335"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}