{"id":317,"date":"2008-01-31T23:26:37","date_gmt":"2008-02-01T07:26:37","guid":{"rendered":"http:\/\/westfall.raquet.net\/?p=317"},"modified":"2008-01-31T23:26:37","modified_gmt":"2008-02-01T07:26:37","slug":"well-hey-there","status":"publish","type":"post","link":"https:\/\/westfall.raquet.net\/?p=317","title":{"rendered":"Well hey there."},"content":{"rendered":"

\"january31-003.jpg\"<\/a><\/p>\n

Yesterday I forgot to talk about prayer time.\u00a0 Greyson and I took some time to pray for his old friend Sebastian.\u00a0 It was really sweet.\u00a0 Actually Greyson let me come up with the words and he pretty much just prayed a prayer of affirmation along with mine.\u00a0 He did fold his hands (with help) for the prayer.\u00a0 I haven’t commented on Sebastian as I haven’t seen his parents in awhile.\u00a0 We saw them yesterday, which was a big day for them.\u00a0 Sebastian had surgery to take out his temporary brain shunt and put in his permanent one that drains into his stomach cavity.\u00a0 The surgery went well and Sebastian seems to be healing well.\u00a0 Today we were told that Sebastian’s heart appears to be OK so we are praising the Lord for the good news.\u00a0<\/p>\n

OK back to Greyson.\u00a0 Well not a lot to report today.\u00a0 His c02 was 70, not great but there was improvement in some of the other numbers that make up his blood gas.\u00a0 Part of those numbers are measures the acid level of his blood and it was better so the drug they are giving him to get his system balanced out seems to be working.\u00a0 We’ll see what tonights numbers are.\u00a0 He slept for most of the time we were there, and worked himself into a frenzy a couple times (which led to signficant de-sats and the dreaded blue color we are not fans of).\u00a0 Some of this was gas, some of this was probably reflux, and some of it was probably attitude!?\u00a0 The\u00a0strange thing\u00a0is you can now tell pretty easily when this is going to happen.\u00a0 As he gets really upset he turns red.\u00a0 If this redness turns a bit more purple he’s starting down a bad path.\u00a0 Well since he has no oxygen reserves if he won’t relax and breath he will have a major de-sat.\u00a0 If his oxygenation falls below 60 he just doesn’t have enough to bring himself back so he has to have extra oxygen to help him.\u00a0 The challenge is knowing whether or not he has crossed the line before he settles down and starts breathing.\u00a0 A couple times today he needed extra oxygen.\u00a0 A couple times he did it himself.\u00a0 We are working on enrolling him in a new class entitled “no matter what, you still gotta breath”.\u00a0 Basically this class (which I hope you realize is a figment of my imagination) teaches kids that when you are passing gas, you still gotta breath.\u00a0 When you are upset and screaming, you still gotta breath.\u00a0 When you sleep, eat, poop, reflux, have a shirt pulled over your head, or any other thing you can think of, YOU STILL GOTTA BREATH!\u00a0 We are hoping he gets enrolled soon as there is nothing like early education!<\/p>\n","protected":false},"excerpt":{"rendered":"

Yesterday I forgot to talk about prayer time.\u00a0 Greyson and I took some time to pray for his old friend Sebastian.\u00a0 It was really sweet.\u00a0 Actually Greyson let me come up with the words and he pretty much just prayed … Read More →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[465],"tags":[],"class_list":["post-317","post","type-post","status-publish","format-standard","hentry","category-current"],"_links":{"self":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts\/317","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=317"}],"version-history":[{"count":0,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts\/317\/revisions"}],"wp:attachment":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=317"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=317"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=317"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}