{"id":272,"date":"2008-01-12T00:20:00","date_gmt":"2008-01-12T08:20:00","guid":{"rendered":"http:\/\/westfall.raquet.net\/?p=272"},"modified":"2008-01-12T00:20:00","modified_gmt":"2008-01-12T08:20:00","slug":"shhhhim-hiding","status":"publish","type":"post","link":"https:\/\/westfall.raquet.net\/?p=272","title":{"rendered":"Shhhh\u2026.I\u2019m hiding."},"content":{"rendered":"

\"january11-003.jpg\"<\/a><\/p>\n

What do I say about today?\u00a0 This picture is how I found Greyson when I came in.\u00a0 Looking all cute and sitting up in bed (again with help) eyes WIDE open looking at me.\u00a0 Stacy took his temperature and it was great so we began to work on his diaper\u00a0and found one VERY large diaper.\u00a0 We have heard many diaper stories that you would call, “went up the backside” (you parents will understand that I’m sure!) well what we found was something no one warned us about, it can be “up the frontside” as well as the back!\u00a0 Man what a mess.\u00a0<\/p>\n

So we got him all changed and he got his breathing treatment, we tucked him in and Stacy left to go pump.\u00a0 I was asking the nurse about his chest X-ray when I heard Greysons monitor alarm.\u00a0 Nothing new here happens all the time.\u00a0 Well when I looked up at the monitor I immediatly realized it was not his oxygen saturation.\u00a0 Weird cause that is what is always alarming.\u00a0 It only took a half a second to realize that it was his heart rate that was alarming.\u00a0 Greyson’s heartrate shouldn’t be below 100 yet it was alarming because it was only 87.\u00a0 I stepped over to his crib (about two steps at most) and began to massage his chest while continuing to watch the monitor.\u00a0 I looked at Greyson and he still looked pink so I wasn’t worried.\u00a0 Then I looked back at the monitor (by this time the RT who was right there was looking) and Greyson’s oxygen level was reading 23 percent (shouldn’t be below 87, under 80 is considered a de-sat)\u00a0 his heart rate was still low and when I looked back at Greyson he was clearly not doing well.\u00a0 I’m not sure I ever said that you can tell when his oxygen level is low by looking around his eyes and his lips.\u00a0 If his level is low they will begin to turn a little blue.\u00a0 Well I didn’t have to look at his eyes or his lips as his whole face was purple.\u00a0 NOT COOL.\u00a0 The RT gave him extra oxygen, unhooked his cpap and bagged him and soon his numbers came back up.\u00a0 All of this took about 30 seconds, which doesn’t sound long until your watching this type of event.\u00a0 Scary just doesn’t seem to capture the moment properly, but it’s all I have.<\/p>\n

Greyson has had a few of these episodes lately.\u00a0 This is kind of strange as he is old enough that he should have outgrown this type of behavior.\u00a0 So what we believe is happening is that he is refluxing and when that happens it is not only painful and agitating to him but can cause all this other stuff as well.\u00a0 I forgot to mention that yesterday they reduced his feeding to three hours worth of food given over one hour.\u00a0 Today they changed it back hoping this might help with the reflux.\u00a0 If it continues to be a problem or gets worse they will give him medicine for it, or do a study to make sure it is reflux.\u00a0 Reflux is extremely common in preemies as the valve that keeps stuff in their stomach is weak and they have a tube down it that is keeping it open to put the food in with.\u00a0<\/p>\n

Last nights blood gas was good, c02 of 60.\u00a0 Tonights will be interesting as Greyson was on the nasal canula 2 different times today for a couple hours.\u00a0 It’s late so I’ll stay up and get the numbers here in a couple minutes.\u00a0 Sorry I probably won’t come back out to the computer and post them on the blog so you’ll have to wait till tomorrow.<\/p>\n

Today was a somewhat brutal reminder that this is going to be a very long process.\u00a0 Greyson’s due date is next wednesday and he will not make it home by then.\u00a0 As of now we are hoping early February.\u00a0 Even once he comes home he will not a “typical” baby.\u00a0 He will be on oxygen and we will have to be EXTREMELY careful with him for the first couple of years.\u00a0 I know it will have its difficult times, but right now we just desperately want to get to a place where we can bring him home.\u00a0 Of course we only want him to come home when he is stable (no more episodes like today, especially without nurses right there to help him through it!).\u00a0 Sometimes I forget that as good as he is doing he is still in the NICU, they don’t call it the intensive care unit for nothing.<\/p>\n

Oh really quick, nothing significant about the X-ray.\u00a0 Greyson has chronic lung disease which we already knew.<\/p>\n","protected":false},"excerpt":{"rendered":"

What do I say about today?\u00a0 This picture is how I found Greyson when I came in.\u00a0 Looking all cute and sitting up in bed (again with help) eyes WIDE open looking at me.\u00a0 Stacy took his temperature and it … Read More →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[465],"tags":[],"class_list":["post-272","post","type-post","status-publish","format-standard","hentry","category-current"],"_links":{"self":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts\/272","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=272"}],"version-history":[{"count":0,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts\/272\/revisions"}],"wp:attachment":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=272"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=272"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=272"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}