{"id":21,"date":"2007-11-16T04:25:50","date_gmt":"2007-11-16T04:25:50","guid":{"rendered":"http:\/\/westfall.raquet.net\/?p=21"},"modified":"2007-11-16T04:25:50","modified_gmt":"2007-11-16T04:25:50","slug":"decision-time","status":"publish","type":"post","link":"https:\/\/westfall.raquet.net\/?p=21","title":{"rendered":"Decision Time"},"content":{"rendered":"

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Well unfortunately Greyson has continued to struggle with his breathing (well maybe a more accurate way to put it is he’s struggling with his ventilating?).\u00a0 His CO2 numbers continue to be high and he is maxed out on the vent.\u00a0 The Dr. came in and talked to us tonight and basically informed us that we would have to do something soon.\u00a0 The options are limited.\u00a0 They can’t go any higher on this vent so the only two options are 1)\u00a0 Start a short round of steroids or 2) go back to the jet vent.\u00a0 There are problems with both choices.\u00a0 Greyson left the jet vent because he was fighting it to much for it to be effective.\u00a0 The jet vent also agitates the lungs, even though it is doing less damage than the conventional vent.\u00a0 If we went that route at some point he would still have to come back to the conventional vent and would probably still struggle to ween off it.\u00a0 So the steroid option is the one the Dr. recomends.\u00a0 Usually children do well and the steroids give them just enough push to get them off the vent.\u00a0 Their lungs can then heal and grow and they can progress after that.\u00a0 The down side is the use of steroids is linked to things like brain damage, slow growth, and cerebal palsy.\u00a0 There would also be a risk of another bowel perferation.\u00a0 Basically tonights Dr. will watch him overnight and consult with the oncomming Dr. in the morning.\u00a0 They will then call us and together we will decide what we are going to do.\u00a0 At this point Stacy and I are favoring the steroids and praying they will work very quickly so he will only be on them for an extremely short time.\u00a0 This should greatly reduce the negative side effects.<\/font><\/p>\n

On a positive note Greyson looked a lot better today.\u00a0 His hands and arms were not puffy at all.\u00a0 He still had a little puffyness in his face and legs but markedly less than he has had.\u00a0 We are very thankful for that.\u00a0 His weight was basically the same as yesterday which is also a very positive thing.<\/font><\/p>\n

So pray for Greyson’s lungs and for us (the Dr’s, Stacy, and I) to make the right decision about what to do at this point.\u00a0 It is not an easy decision but he has to be able to breath if he is ever going to be able to come home.\u00a0 With the ventilator damaging the new lung growth something has to happen so that he can get ahead enough to get off the vent so he can heal.\u00a0 Steroids look like the most promising solution at this point.<\/font><\/p>\n","protected":false},"excerpt":{"rendered":"

Well unfortunately Greyson has continued to struggle with his breathing (well maybe a more accurate way to put it is he’s struggling with his ventilating?).\u00a0 His CO2 numbers continue to be high and he is maxed out on the vent.\u00a0 … Read More →<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[465],"tags":[],"class_list":["post-21","post","type-post","status-publish","format-standard","hentry","category-current"],"_links":{"self":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts\/21","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=21"}],"version-history":[{"count":0,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=\/wp\/v2\/posts\/21\/revisions"}],"wp:attachment":[{"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=21"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=21"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/westfall.raquet.net\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=21"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}