Today was a good day at home. Stacy said Greyson played a lot and did really well. His secretions were down a bit so we did not have to suction as much and he seemed to be doing great. We … Read More
Well today Greyson went to his first pediatricians office visit. He did very well until they had to draw some blood. The first attempt was unsuccessful (you can see the orange dressing he got after he was stuck) so they … Read More
Greyson gets quite a few meds at 10am and 10pm as seen in the picture. The good news is in a couple more days he will basically just get these with one other med at 4am and 4pm. So the … Read More
Today was a really fun day. As I mentioned yesterday we didn’t have a nurse today, so we spent the day chilling at home, just the family. Greyson did really well and there were no incidents at all. His g-tube … Read More
Well today we got our first shake up of life at home. Stacy called me at work and told me we needed to take Greyson to Tacoma to see one of his Doctors. He has developed some granuloma tissue which … Read More
Today Greyson tried out his swing and got some tummy time on the floor. He is definately getting his head strength back and is starting to work on lifting himself again. He liked the swing alright, I think it will … Read More
Well today was another very busy day. I woke up this morning to the sounds of a shrieking child (both at 4:30 and 7:30am) and felt like a real parent. It was so incredibly nice to be able to throw … Read More
Well by the time we got the hospital this morning (pretty early since we stayed in the parent appartment across the street, we found Greyson had made himself a sign and was informing the hospital staff that he appreciated … Read More
Tonight when we came in Greyson was all propped up between two large pillows. Why? Just because he is getting spoiled. I told him not to get to attached to this kind of treatment, because it will be different when … Read More
Well the big 48 hour live in is over, and I think we have survived. Honestly I have to say that was not easy. We decided that rather than trying to sleep in the room with Greyson, one of us … Read More